Gamifying Death: How the Death Deck is Changing End-of-Life Conversations

Discussing death and dying is never easy, yet it remains one of the most important conversations we can have. In a recent episode of Death and Dying in the Digital Age, host Niki Weiss sat down with Lisa Pahl, LCSW co-creator of The Death Deck, to explore how humor, gamification, and thoughtful prompts can make these challenging discussions more accessible.

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Discussing death and dying is never easy, yet it remains one of the most important conversations we can have. In a recent episode of Death and Dying in the Digital Age, host Niki Weiss sat down with Lisa Pahl, LCSW, co-creator of The Death Deck, to explore how humor, gamification, and thoughtful prompts can make these challenging discussions more accessible.

Lisa’s professional experience in hospice and emergency medicine inspired her to create this innovative tool. Over nearly two decades, she has witnessed how unspoken wishes can lead to confusion, stress, and missed opportunities for connection in families facing the end of life. The Death Deck offers a structured, lighthearted way to address these conversations before they become urgent, bridging the gap with humor and thoughtful questions.

Why is Talking About Death So Difficult?

Most people avoid discussing death due to discomfort and societal taboos. Lisa explains that many people are unprepared for these conversations, often because they were never modeled or encouraged in childhood. This avoidance can lead to chaos and misunderstandings when families face an end-of-life crisis.

Lisa shared the story of a hospice patient named Joe, whose family struggled with conflicting opinions about his care because his wishes were never discussed. Years later, Lisa and Joe’s wife, Lori, created The Death Deck to address this gap, using humor to make the process less intimidating.

Humor is a powerful tool for reducing fear and stigma around mortality. Questions in The Death Deck range from playful to profound, offering an easy entry point for deeper conversations. Starting with lighthearted prompts—such as "Would you buy your dream house if someone had been murdered there?"—the clever tool helps break the ice. As Lisa explains, "It’s playful at the start, and then we move toward the more poignant questions."

Using Humor and Gamification to Break Barriers

Gamifying conversations about death creates a safe, approachable space. Lisa shared that The Death Deck’s combination of humor and storytelling allows families to laugh together while opening up about important topics. Players often find themselves sharing stories and experiences they might otherwise avoid.

Lisa emphasized the importance of balance, explaining that humor doesn’t diminish the seriousness of the topic but makes it easier to approach. “When we can laugh, we lessen the intensity and fear. It’s not this scary thing in the corner anymore—it’s just a fact of life.”

The Death Deck and now available EOL Deck has become a favorite tool among professionals in the end-of-life space. Hospice workers, social workers, and end-of-life doulas use it to guide meaningful discussions. For families, it provides a structured way to explore decisions about healthcare, legacy, and personal wishes in a less intimidating environment.

Addressing Cultural and Digital Challenges

Cultural beliefs often complicate discussions about death. In some communities, talking about death is seen as inviting bad luck. Lisa noted that while these sensitivities require extra care, they don’t have to prevent meaningful conversations. She encourages families to start with less direct topics, such as illness progression, before moving into end-of-life planning.

In addition to cultural barriers, the rise of digital technology has introduced new challenges. Many families struggle with accessing online accounts or managing digital assets after a loved one’s passing. Lisa urges patients and families to plan ahead by organizing digital passwords and account details. “The lack of access to people’s accounts is one of the top frustrations I hear from grieving families,” she shared.

This issue is particularly pressing in the digital age, where everything from bank accounts to social media profiles is managed online. Lisa recommends including digital legacy planning in end-of-life preparations to ease the burden on surviving family members.

Empowering Families Through Conversations

Talking about death isn’t just about planning for the end—it’s about living with intention. Lisa believes that empowering families to have these conversations before a crisis arises is one of the greatest gifts we can give. By aligning on key decisions, families can reduce the emotional burden of second-guessing their loved ones’ wishes after they’re gone.

Lisa advises starting small, using tools like the Death Deck to open the door to meaningful discussions. She also recommends using real-life scenarios or media—such as movies, TV shows, or articles—to spark conversations. For example, a storyline about illness or loss can naturally lead to discussions about personal preferences and values.

For professionals, The Death Deck and EOL Deck offers a valuable resource. End-of-life doulas, social workers, and other caregivers have found it to be an effective way to facilitate conversations that might otherwise feel too daunting. These card games helps create a safe space for families to explore sensitive topics together.

Finding Peace in Preparation

Planning for the end of life doesn’t have to feel daunting or grim. With tools like The Death Deck and EOL Deck, families can approach these conversations with clarity, compassion, and even a little humor. Lisa emphasized that preparation not only eases the logistical burdens on loved ones but also provides emotional peace of mind.

By starting early and taking small steps, families can ensure that their wishes are honored and their legacy is preserved. Lisa shared that having these conversations before a crisis can make all the difference in helping families feel connected and prepared.

The emotional benefits of preparation are profound. Lisa noted that one of the most common questions grieving families ask is, “Did I do the right thing?” By discussing wishes openly, families can feel more confident in their decisions, reducing the second-guessing that often accompanies grief.

Start the Conversation

Discussing death is never easy, but it’s an essential part of living well. Whether through tools like The Death Deck or small conversations sparked by real-life events, these discussions help families navigate the end of life with greater ease and understanding.

Start small, share a laugh, and open the door to meaningful conversations. By embracing tools like The Death Deck, we can transform death from a taboo subject into an opportunity for connection and empowerment.

Ready to begin your journey? Listen to the full episode of Death and Dying in the Digital Age for more insights and stories. Together, we can create a culture where discussing death becomes a natural and enriching part of life.




Don't leave any pieces of your legacy to chance. As a next step, you can start and develop your plan by downloading the app, My Final Playbook. Starting with the free course, you'll learn what a Final Playbook is, why you need one and how to start the end-of-life planning process. 


In the digital age, planning your legacy is just a click away. Until then, keep your password safe and your playbook up to date. 



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Leaving A Music Legacy in the Digital Age

This week on Death and Dying in the Digital Age, we consider end-of-life care and the legacies we leave behind. Niki Weiss sat down with accomplished music therapists Brooke Carroll Lemchak, PhD and Karen Dennery Melita, MMT, MT-BC to explore how music therapy helps bridge the gap between life and death while creating lasting emotional connections that can be there for loved ones when you no longer are. Both Brooke and Karen bring extensive expertise to this conversation, having dedicated their careers to music therapy after completing rigorous academic and clinical training at Temple University. Their combined experience spans decades of working with hospice patients across all age groups, from young children to elderly adults. As board-certified music therapists, they've witnessed firsthand how music can transform end-of-life experiences and create meaningful legacies for those left behind. The Power of Musical Memory in End-of-Life Care Scientific research has shown that musical memories are stored in the prefrontal cortex, one of the last areas of the brain to deteriorate as we age. This explains why individuals with advanced dementia who struggle to recognize family members can still recall and sing along to songs from their youth with perfect clarity. For music therapists working in hospice settings, this connection becomes a powerful way to maintain meaningful relationships until the very end. Through carefully selected songs and musical interactions, patients can express emotions, share memories, and connect with loved ones even when traditional communication becomes difficult. The therapeutic value extends beyond the patient to family members, who often find comfort in seeing their loved ones engage with familiar music. You can create new positive memories that family members can cherish long after their loved one has passed, helping to balance the challenging emotions that come with loss. Creating Musical Time Capsules for Loved Ones In today's digital age, creating musical legacies has become more accessible than ever. Modern technology allows us to easily compile and preserve meaningful songs that represent our relationships with different people in our lives. Unlike physical recordings that can deteriorate over time, digital platforms ensure these musical memories remain intact for future generations and can be a preservation of your legacy. Music therapists encourage people to start building these musical time capsules while they're healthy, rather than waiting until they face a health crisis. This allows for thoughtful selection of songs that truly represent relationships and experiences, creating more meaningful collections for loved ones. The process of creating musical legacies can be therapeutic in itself, helping individuals process their emotions and reflect on important relationships in their lives. It becomes a way to express feelings that might be difficult to put into words, especially for those who struggle with verbal expression. The Impact of Original Songs Sometimes, existing songs aren't enough to express the complex emotions and messages we want to leave behind. Music therapists often work with patients to create original songs that address specific relationships or unresolved feelings. These personalized compositions become powerful tools for healing and closure as well as a personal record to share with future generations. One particularly moving example involved a patient with an estranged daughter. Through songwriting, he found a way to express his regrets and love in a way that traditional communication hadn't allowed. While the song's reception by his daughter remained uncertain, the process itself provided vital emotional release and closure for the patient. The creation of original music often serves multiple purposes: it helps patients process their own emotions, provides a creative outlet during difficult times, and leaves behind a unique, personal legacy for loved ones. These songs become time capsules of emotion, carrying messages of love and healing across generations. Technology's Role in Preserving Musical Legacies Here are several ways technology has revolutionized how we create and preserve musical legacies: 1. Digital Storage Platforms Cloud-based music libraries Dedicated playlist folders for different loved ones Backup systems to prevent loss 2. Recording Options Voice memo applications Professional-quality recording software Digital audio workstations 3. Sharing Capabilities Easy distribution to family members Ability to add personal notes to songs Options for future scheduled sharing Modern digital tools have transformed how music therapists work with patients and how individuals can create their own musical legacies. What once required extensive physical sheet music collections can now be accessed instantly through digital libraries. This accessibility allows for more spontaneous and responsive music therapy sessions while ensuring that created works remain preserved for future generations. Time to Start Your Legacy The time to start creating your musical legacy is now, not when facing end-of-life decisions. Begin by thinking about the special people in your life and the songs that remind you of them. Consider creating digital folders for each loved one, filling them with meaningful music that represents your relationship. Your musical legacy doesn't have to be complex or professionally produced. It can be as simple as a playlist of songs that tell your story or express your feelings. The key is to start the process while you have the clarity and time to make thoughtful choices about what you want to leave behind. Don't wait until tomorrow to begin creating these precious gifts for your loved ones. Whether through existing songs or original compositions, music provides a unique way to ensure your love and memories live on. In the end, these musical legacies become bridges across time, allowing your voice to continue speaking to future generations through the universal language of music. Don't leave any pieces of your legacy to chance. As a next step, you can start and develop your plan by downloading the app, My Final Playbook. Through this app, you'll be able to start and learn how to organize your legal, financial, physical, and digital assets today. In the digital age, planning your legacy is just a click away. Until then, keep your password safe and your playbook up to date.

The Gift of Asking: Why Funeral Registries Are the Future of Grieving

When someone we love dies, the silence that follows can be deafening. But almost immediately, another sound fills the air. It is the chorus of well-meaning friends and family asking, "How can I help?" It is a beautiful question that comes from a place of love. Yet, for the person deep in grief, that question can feel like a burden. You are exhausted and your brain is in a fog. You likely have no idea what you need, let alone how to articulate it. Maybe you need help paying for the funeral, which can cost upwards of $15,000. Maybe you just need someone to mow the lawn or pick up the kids from school. But saying that out loud feels impossible as it feels vulnerable. I recently sat down with Janet Turkula and Ryan Oliveira, the team behind GiveWillow, to talk about this exact dilemma. They have built something that feels both revolutionary and incredibly obvious. It is a registry for funerals. From Trauma to Tech: A Personal Story Janet’s journey to founding GiveWillow started in a place many of us fear. In 2010, she was just 21 years old when her father passed away suddenly . She was young, grieving, and completely unprepared for the reality of planning a funeral. Like many people, she assumed her dad would live well into his 80s or 90s. He was a blue-collar worker with no savings and no will . Suddenly, she was faced with funeral costs she could not afford while trying to process the trauma of losing her parent . Years later, a friend lost an uncle, and Janet wanted to help. She looked online for a way to send something meaningful. She wanted to do something other than sending flowers or a casserole. She found nothing . In a world where we can order a car or a meal with a single tap, there was no easy way to support a grieving family financially or practically. That gap in the market and in our culture of care birthed GiveWillow. Why a Registry? We have registries for weddings. We have them for babies. We even have wish lists for birthdays . These are all major life transitions where our community gathers around to support us. So why do we stop when it comes to the most difficult transition of all? A funeral registry works just like any other registry. You can select the specific things you need help with. This might include the big-ticket items like a casket, an urn, or catering for the reception . But it also includes the hidden costs that people often forget. These can include travel expenses for family members or even the fee for refrigeration at the funeral home. By listing these items, families can give their community a concrete way to help. Instead of a vague "let me know if you need anything," a friend can log on and see that they need help covering the cost of the flowers. It transforms a stressful question into a simple and actionable act of love. More Than Just Money One of the most touching parts of my conversation with Ryan was hearing about the "time and effort" feature on the platform. Not everyone needs financial help, and not everyone can afford to give money. But support comes in many forms. GiveWillow allows families to register for acts of service too. You can add items like "lawn care," "running errands," "childcare," or even just "sitting with me" to your registry . This is profound because it validates those needs. It tells the grieving person that it is okay to need help with the laundry or to need someone to drive the carpool. And for friends who want to help but do not have extra cash, it gives them a way to show up that is just as valuable. Breaking the Silence Around Cost We rarely talk about the price tag of death. It feels taboo to put a dollar amount on a funeral as if it somehow cheapens the loss. But the reality is that funerals are expensive. Ryan mentioned that simply going through the process of building a registry can be an eye-opening educational tool. It allows you to see the "sticker price" of your wishes before you are in the emotional heat of the moment. You might realize that the big party with the margarita bar you envisioned costs $15,000 . Knowing that ahead of time allows you to plan. It allows you to ask for help specifically for that celebration rather than being blindsided by the bill later. This transparency empowers families by taking the mystery and the shame out of the financial conversation. A Tool for the Living While GiveWillow is a lifeline for those who have just lost someone, it is also a powerful tool for those of us who are still here. We often think pre-planning is only for the elderly or the sick. But as Janet’s story reminds us, death can be sudden. Creating a registry now, even if you are young and healthy, is a gift to your future self and your family. It acts as a roadmap. It tells your loved ones exactly what you want. Do you want cremation? A green burial? A big party? It removes the guesswork during a time when their brains will be foggy with grief. Ryan noted that they are even seeing people with terminal illnesses use the platform to ask for help with medical bills alongside their funeral wishes . It is becoming a holistic way to support someone through their end-of-life journey. Overcoming the "Ick" Factor I know what some of you might be thinking. "Is it tacky to ask for money for a funeral?" "Does this feel too much like crowdfunding?" Janet was clear that this is not just about raising funds. It is about re-gifting community support. It is about channeling the love that people already want to give into the places where it will actually make a difference. We have all seen the GoFundMe campaigns that circulate after a tragedy. They have their place. But a registry feels different because it feels personal and intentional. It allows a friend to say that they bought the flowers for Dad's service rather than just throwing money into a pot. It creates a connection between the giver and the receiver that is rooted in care rather than just cash. A Small Step You Can Take Today If you are reading this and feeling a little overwhelmed, that is okay. You do not have to plan your entire funeral today. But maybe you can take one small step toward opening the conversation. Check out GiveWillow just to see what a funeral registry looks like. Notice the categories. See what things cost. Talk to your partner or a close friend about one thing you might want or definitely do not want at your own service. Breaking the silence is the first step toward taking back control. Death is the one certainty we all share. By planning for it, and by allowing our community to support us through it, we are not being morbid. We are being human. We are letting love have the last word. 🎧 To hear Janet and Ryan’s full conversation with Niki Weiss, watch the episode on The Digital Legacy Podcast. You can also explore their platform at GiveWillow.com.

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